A reader named Carol writes:
This has been very frustrating for my son-he has Intermittent Exptropia- we have tried COVD, UCLA, you name it and Yes he has a visionproblem-but everyone wants $$$$$ A good 5,000 – 10,000 We are not rich, what gets me thought is that if I were divorced form my husband-we could be LOW INCOME and VSP would step in the public schools would step in – but of course he has been diagnosed per the shcools as ADD/ADHD-its easier to pop apill then see the real problem, this also has effected the way the is treated in shcool being labeled-now all we have is a frustrated son whom feels hatred and disgusted!!
It breaks my heart that your child is not getting help for his exotropia. My diagnosis is intermittent exotropia as well. I don’t want to see any child go through life, as I did, without receiving help with their strabismus.
Carol, please don’t give up. There is great push among eye specialists to work toward ensuring that children with vision problems can receive help. New legislation continues to be introduced, and laws are changing in many areas.
Here are some ideas:
- Last month, I did a write-up on P.A.V.E. Check their website to see if there is a local chapter in your area, and if so, ask if they are aware of how you may get help.
- Join a support group. You can find a number of support groups at Yahoo Groups, including our new Eyes Apart Strabismus Support.
Perhaps others will offer suggestions of help for your son in the comments area. Please check back often.
[Groups updated 10-23-06]
Photo Credit: Janet Goulden