Finding help for the children

boy walking through fieldA reader named Carol writes:

This has been very frustrating for my son-he has Intermittent Exptropia- we have tried COVD, UCLA, you name it and Yes he has a visionproblem-but everyone wants $$$$$ A good 5,000 – 10,000 We are not rich, what gets me thought is that if I were divorced form my husband-we could be LOW INCOME and VSP would step in the public schools would step in – but of course he has been diagnosed per the shcools as ADD/ADHD-its easier to pop apill then see the real problem, this also has effected the way the is treated in shcool being labeled-now all we have is a frustrated son whom feels hatred and disgusted!!

It breaks my heart that your child is not getting help for his exotropia. My diagnosis is intermittent exotropia as well. I don’t want to see any child go through life, as I did, without receiving help with their strabismus.

Carol, please don’t give up. There is great push among eye specialists to work toward ensuring that children with vision problems can receive help. New legislation continues to be introduced, and laws are changing in many areas.

Here are some ideas:

  • Last month, I did a write-up on P.A.V.E. Check their website to see if there is a local chapter in your area, and if so, ask if they are aware of how you may get help.
  • Join a support group. You can find a number of support groups at Yahoo Groups, including our new Eyes Apart Strabismus Support.

Perhaps others will offer suggestions of help for your son in the comments area. Please check back often.

[Groups updated 10-23-06]

Photo Credit: Janet Goulden

4 thoughts on “Finding help for the children”

  1. Hi Carol,

    I am so sorry you are going through this with your son. I know that there have been a few parents on Prevent Blindness America http://www.preventblindness.org forum that have come on saying they didn’t have the money for all of this and Mr. West from the Prevent Blindness group came on there and told them to contact him personally about getting financial help for this. Try to contact Prevent Blindness and see if they can help you with this. They are great. I hope this gets better for him. How old is your son? Does he wear glasses or patch? What is going on right now with his eyes? Let us know.

    Kelly H.
    http://www.bjortandcompany.com

  2. I am so glad other people are in the same boat as my husband and I are in. My
    two year old son was diangosed yesterday with strabismus with amblyopia. He
    is going to need surgery in several months. My son does not have health insurance as
    group health insurance is so expensive but we make to much to get state help. It
    is very frusturating because you would do anything for your son. Please if you or anyone
    else find out where we can get help to pay for medical expenses let me know.

    Diane W.

  3. I have not written in a while — but in the past 6 months – we have been doing vsion therapy at home and paid out of pocket – my son has been very faithful with this – we also have a extra 100 sessions added on how I dont know! But now dealing with the publci school system and recently finally doind a vision test and found his vision at 30/30 and also after viewing 3 figures on a screen my son could on see the second and third figures – so he has a blind spot – what is really ruing my child is the schools are so determined they know it all – and recently having a insructor confront me and diagnosis of my son – HE HAS ADHD – all you need is Ritalin from your doctor – this obviously will never end! what gets me is my son has a heart murmur and has had febrile seizures – they have no background on his medical history – thank god – I am smart enough – but boy they make it tough on the parent and the child!!!

  4. This is copied from a post I put on a related site a few minutes ago–you might want to skip to the last 2 paragraphs.

    I only started noticing that I had a lazy eye when students (I’m a teacher) had trouble telling that I was looking at them. “Who, me?” was the common refrain. “What do you mean? I’m looking DEAD at you!!!” I then started to get this more and more, and started looking at old pictures. I’ve worn contacts and glasses before, but haven’t in years, and I fear I’ve made it worse, since I haven’t addressed an optometrist’s concerns about high ocular pressure/glaucoma risk, and haven’t had an exam in years, but I see pretty good, and can function and drive. I do have some astigmatism, and near-sightedness, however.

    Anyways, I’ve noticed people looking away from me more and more (and I used to have a penetrating gaze, that would usually mesmerize, and I felt very visually-connected with people. However, I think the flash in pictures made my right eye wander, and they started coming out looking pretty bad, and made me more and more self-conscious. I got pretty depressed about it recently, having had joined Facebook, and not being able to post a good picture(s) of myself (especially since I’m now “face-to-face” with people I went to high school with 20 years ago).

    I found a solution. I notice that I feel more confident when wearing sunglasses, for the obvious reason that it hides the lazy eye. Now, I just use my very strong imagination to pretend that I’m wearing sunglasses. Bingo! It worked JUST LIKE THAT! I’m no longer afraid to make eye contact with people. Before, I’d search peoples’ eyes, almost to the point that I’d wait for them to notice, just to confirm my condition–of course, you will find what you’re looking for, but even knowing that didn’t make me feel any better.

    I don’t know if this’ll work for you, but it’s helped me instantly and tremendously. It might even have a physiological effect–who knows?

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