Seeing beyond strabismus

Open window with curtainWhen I updated my post-surgery status on April 12, things weren’t looking very good, literally. My January 12 strabismus surgery had originally taken me from a torsion to near perfect vision. But my vision had deteriorated over the next few weeks, leaving me with a hypertropia, and my eye/brain connection couldn’t keep up. It was very difficult for me to do anything that required me to focus at close-up. My vision was worse than it had ever been.

But that was before the latest set of events. I could not keep up at work because of my deteriorating ability to focus, and my boss started seeking a replacement for me in mid-April. They allowed me to stay on until my replacement could be found and trained. My last day at my job was June 15. As things slowed down at work for me, my eyes were not as strained. I also got some new prism glasses that made a huge difference. Lastly, I had a sleep study done and am on CPAP for my sleep apnea now, and that has helped my eyes also.

I’m doing much better as long as I don’t overuse my eyes. I still have to stop and let them rest often. I have also developed some shortness of breath with activity related to an old injury (that’s also causing my sleep apnea), so it works out pretty good. I work on the computer until my eyes get tired, then I work on projects around the house until I get short of breath. By then my eyes are rested enough to go back to the computer for awhile!

I’m looking at work possibilities, and what I may be able to do to provide income. I’m planning to do some things from home to earn income for now. I’m also doing vision therapy from home now. Meanwhile I’m very thankful for the improvements in my vision and my relief from sleep apnea!

Photo credit: Dolamore

13 thoughts on “Seeing beyond strabismus”

  1. I am very sorry to hear about your surgery. I hope things get better for you. You are a really great person that helps out so many people with your website. God bless you and take care.

  2. Hi,

    I think its good your trying to reach out. I have the opposite problem. I see strait but my eyes are not pointing strait. I want eye muscle surgury but not quite sure.

    AL

  3. Hello my name is Don. I have had for about 2 months now strange symptoms. It started with feeling like the flu. I had a headache,aches and pains as well as fatigued. I had pounding glands. Then it went into a non stop running nose. This lasted for quite awhile until recently it slowed down after nasal spray. I now have mucus coming up that is green and brown colored. I have a hoarse and raspy cough.
    I have bad fatigue,pounding glands. My eyes twitch and throb a little, still some nasal drip issues. What is this that continues to baffle even my doctor. He believes it is allergies. I have never had allergies. I also
    had a mild fever yesterday,chills and now realized I lost 8 pounds. I am going to see an alergist as soon as I get the appointment. Any ideas please email me back.
    Sincerely Don Osborne

  4. Don Osborne,

    Looking at your symptoms, I would suggest that you take an appointment for a neurologist. I remember once reading somewhere about a girl having a continuous nasal drip. After multiple visits to various doctors, she finally met a neurosurgeon and the nasal drip turned out to be CSF leak.

    Maybe its best that you check it out with a neurologist / neurosurgeon. I think CT scan would be the first thing that you might need to take. Keep me updated and let me know if you have any questions at anand.satavalekar@gmail.com

  5. Hi Lois,
    Thanks so much for putting up this website. I have a lazy left eye which I fear is getting progressively worse. It’s really affecting my studies and taking over my personal life! I am considering getting surgery but fear for the the risks- and am trying to see how others cope on the net. I have been looking for a forum to share my problems with, actually, for a while.
    Thanks again, and I hope you keep updating!
    Cheers,
    Jenn

  6. Jenn, you may want to check out our yahoo support group. Due to some chronic health problmes, I’m not updating the web site much now, though I do keep hoping to be able to update again. But our yahoo group is very active:
    http://health.groups.yahoo.com/group/EyesApart/

    Also lots of people continue to comment on the “My Strabismus Surgery post:
    http://www.eyesapart.com/2005/11/02/my-strabismus-surgery/

    Hope this helps, and do check back, hopefully I’ll eventually be able to post again.
    Lois

  7. Lois:

    I posted several blogs on your other site which has numerous comments, but I cannot find it. By accident I found it the other day and posted, but I went to eyes apart:living with strabismus the last two days and could not find it. What is that site so I can google it or go to it directly? Thanks

    George

  8. George, EyesApart.com is the only strabismus blog I have. There are numerous pages here. In the ‘recent comments’ in the right toolbar, it shows you recently posted to the ‘My Strabismus Surgery’ entry. There is a link there you can click to go to that post. You can see other pages by looking in the topic search, also in the right sidebar. My other websites are listed in the right sidebar, if you are looking for one of them. If you have further trouble with it, let me know.
    Lois

  9. Hi Lois,
    I’ve divergent squint on both side of my eyes. I’ve been thinking of corrective surgery but fear for the risks. Just would like to find out from you, is’t worth it to do not to do it? I’m 30 years old this year

  10. Lois:
    Thanks for the reply back in March. I just found it today. Just to let you know, I had the strabismus surgery done last Otober on my right eye which was out 45 diopters (about as must as it can go). So far, 9 months later, my eyes are perfectly straight as far as I or anyone else can tell. Everyone looks straight into my eyes when they talk to me and I look back. It had been 60 years since I could do that. I will to to you EyesApart.com site.
    George

  11. I just found this post.

    I recently had a failed strabismus surgery. I’d had vertical double vision for about 40 years, progressively worsening.

    The surgeon, who is Chief of Ophthalmology. at a highly respected hospital and has a great reputation, was a disaster. She never admitted that it failed. She also demeaned my concern about going back to a very demanding work environment with serious uncorrected double vision shortly after the surgery, implying that I should be able to function, couldn’t write a correct Rx, got annoyed when my responses in the eye exam weren’t what she wanted, etc.

    When I went into surgery, I needed 11 diopters of prism in my glasses. When the surgery was done, I needed 8, but had an additional torsion problem. I expected to be out of work for three weeks–thought I’d be done with prism or at least need very little–and I’ve been out for 4 months. I still have problems fusing the two images or getting objects to “stay still” and can’t handle rapid movement, such as driving on the highway. I’m actually writing this with one eye closed. 🙁

    I’m hoping to go back to work soon, hoping that the eyes continue improving post-op, and then hoping to have a more successful surgery in the future.

    I’m not sorry I had the surgery, because I had no choice–life was intolerable with the amount of double vision I had. I only wish I had a better surgeon, one with more compassion at least.

    Double vision is a very strange thing. Nobody can see it when they look at you, and you can’t see it when you look in the mirror–but it affects your whole sense of yourself in the world.

  12. HI.

    I’m going for my strabismus surgery on the right eye – its looking outwards.
    How long will i stay away from work after that?

  13. I just found out that I need 20 BO prism per eye. Can this be done in glasses?

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