New northern California strabismus support group

Susanna wearing prism glasses for Vision TherapyYesterday I shared Susanna’s story. Her photo here shows her wearing prism glasses as part of her home vision therapy. Susanna is currently organizing a northern California strabismus support group. You can read more about this in Susanna’s words below. Just before this went to post, she sent me a note that the support group is not limited to those doing vision therapy, but for all strabismics. The first meeting is tentatively planned to be held in Berkley near the end of July. Email Susanna at the address she provides for further information. Susanna writes:

Do you see two moons and stare at broccoli?

Or perhaps you find the little circles on orange peels and the space between orange pulp to be incredibly captivating while your friends and family don’t understand why you just won’t stop staring and eat.

Are you an adult doing vision therapy in the San Francisco Bay Area and want to meet other adult VT patients on the road to 3D?

I’d like to meet other adults who are doing vision therapy in the San Francisco Bay Area so we can meet in person and swap stories, find ways to provide emotional support and take walks together to point out the new things we see. I live in Cupertino in Silicon Valley. Depending on where people are, we can find a central spot and talk, walk and eat together and comment on the wonderful texture and depth of our food.

So far, I have only had cyber contact with other strabismic or amblyope adults who are undergoing this life-altering therapy and I’d like to meet people in person.

I’ve been in vision therapy for 16 months and I’ve found it to be the most alienating journey I’ve ever been on. When I describe to people who do see in 3D how I find myself staring at carpets, refrigerator doors, citrus peels, trees, rain drops on rose petals, etc, few understand what I am going through. Here I am, a globetrotter quoted in the press for travel advice, and I am spending my time in awe with my jaw dropped staring at the gym carpet — a far cry from the Forbidden City or The Great Wall of China. One person told me that he only fixated his gaze on fruit when he was on drugs. Absent any mind altering illegal substances, the transition to binocular vision can definitely resemble an altered state of consciousness. Being in it alone makes it all the more difficult and frustrating.

By the way, if you’re not keen on broccoli either as an object of admiration or as a food to eat, we can look at other things that have space between branches or have other qualities that require depth perception. With the good weather here, a walk in the park with other monocular to binocular Bay Area people would be excellent.

Susanna, nisamsuzi AT yahoo.com

3 thoughts on “New northern California strabismus support group”

  1. I would love to hear more about your VT. I live in Monterey and hope to walk and talk with you.

    Dianne

  2. Hello, I live in Oakland and would be interested in joining your next meeting. I have strabismus for the last 6 years because of damage to nerves from a brain tumor. I am curious about VT but not currently doing it. Also, I have held off on surgery for many complicated reasons. I sometimes see people with strabismus and want to reach out but stop myself. Please let me know how your Berkeley meeting went and if you plan to have another one. Thank you.

  3. I don’t believe Susanna was able to get the meeting going in the Bay Area. This post is from 2011 when we promoted the meeting here on Eyes Apart that she was trying to organize. Susanna’s blog is at https://oneeyedprincess.wordpress.com/about/ . You can contact her at the email address at the bottom of the post above. Susanna’s email address is also listed on the about page of her blog.
    Lois

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