Comments for Eyes Apart: Living with strabismus http://www.eyesapart.com ...also known as crossed eyes, lazy eye, wall eyes, squint, tropia, double vision, turned, floating, wandering, wayward, or drifting eyes. Sun, 18 May 2008 08:54:39 +0000 http://wordpress.org/?v=2.3 Comment on My strabismus surgery by Rey & J http://www.eyesapart.com/2005/11/02/my-strabismus-surgery/#comment-15354 Rey & J Thu, 15 May 2008 14:39:14 +0000 http://www.eyesapart.com/2005/11/02/my-strabismus-surgery/#comment-15354 Hello, I am really happy to have found this website, I cannot tell by words how grateful I am. My husband and I are going through a lot now that we learnt our three year old daughter might have to do eye muscle surgery. We went for a second opinion and the same thing was said. We are planning to go to Montreal and hoping to it there. The second Doctor referred us to a female pediatric optomologist and said that she was very good. We learnt from both doctors that her vision is great but she is a bit far sighted. She has Esotropia where her eyes turn in alternately but whenever she looks straight ahead they seem straight. Her right eye tend to turn in more than the other but she is using both eyes most of the time and not depending on just one. I am really praying to Almighty God for a miracle because the thought of our baby undergoing surgery is too much to handle right now. Is there anyone out there who can cheer me up by being honest with me and tell me please if I should be worrying as much as I am right now? Is there a mom out there who had to make the decision of eye muscle surgery in their young child, can you please tell me the outcome and what to expect during and after surgery has taken place? I appreciate your help...Anyone......Please tell me what to expect. I know her vision is fantastic but the surgery is to align the eyes properly so that they can work together and not just for cometic reasons. thank you everyone for your assistance. I do appreciate it. Rey & J Hello, I am really happy to have found this website, I cannot tell by words how grateful I am.

My husband and I are going through a lot now that we learnt our three year old daughter might have to do eye muscle surgery. We went for a second opinion and the same thing was said. We are planning to go to Montreal and hoping to it there. The second Doctor referred us to a female pediatric optomologist and said that she was very good. We learnt from both doctors that her vision is great but she is a bit far sighted. She has Esotropia where her eyes turn in alternately but whenever she looks straight ahead they seem straight. Her right eye tend to turn in more than the other but she is using both eyes most of the time and not depending on just one.

I am really praying to Almighty God for a miracle because the thought of our baby undergoing surgery is too much to handle right now. Is there anyone out there who can cheer me up by being honest with me and tell me please if I should be worrying as much as I am right now?

Is there a mom out there who had to make the decision of eye muscle surgery in their young child, can you please tell me the outcome and what to expect during and after surgery has taken place?

I appreciate your help…Anyone……Please tell me what to expect. I know her vision is fantastic but the surgery is to align the eyes properly so that they can work together and not just for cometic reasons.

thank you everyone for your assistance. I do appreciate it.

Rey & J

]]> Comment on New treatment for adults with amblyopia by Irina http://www.eyesapart.com/2006/01/05/adult-amblyopia-treatment/#comment-15301 Irina Tue, 13 May 2008 20:09:45 +0000 http://www.eyesapart.com/2006/01/05/adult-amblyopia-treatment/#comment-15301 My son is 24 and he has a lazy eye condition, can't see . I try to find a doctor here in Canada, preferably in ontario, we live in ottawa, so he can get a treatment.I anyone heard anything pls reply! Irina My son is 24 and he has a lazy eye condition, can’t see . I try to find a doctor here in Canada, preferably in ontario, we live in ottawa, so he can get a treatment.I anyone heard anything pls reply!
Irina

]]> Comment on Life is more level after strabismus torsion surgery! by marsha http://www.eyesapart.com/2007/01/11/life-is-level/#comment-15168 marsha Thu, 08 May 2008 18:36:05 +0000 http://www.eyesapart.com/2007/01/11/life-is-level/#comment-15168 ..I appreciated your post,as I have strabismus surgery june 16,in victoria british columbia(canada)!!Its different in my situation,as I developed strabismus after violent vomiting,due to food poisoning!..The professionals(3 in total,and my gp)believe I had a weak ocular muscle(left eye)from birth,and timing along with the vomiting ,did it in!!I have done the prism lense thing(7 strength changes in 2 months,before it stabilized..Im excited for the next step in healing,this has been a weird trip..Sight is my friend!!haha ..I appreciated your post,as I have strabismus surgery june 16,in victoria british columbia(canada)!!Its different in my situation,as I developed strabismus after violent vomiting,due to food poisoning!..The professionals(3 in total,and my gp)believe I had a weak ocular muscle(left eye)from birth,and timing along with the vomiting ,did it in!!I have done the prism lense thing(7 strength changes in 2 months,before it stabilized..Im excited for the next step in healing,this has been a weird trip..Sight is my friend!!haha

]]> Comment on Coats Disease can cause strabismus and blindness by Sarah http://www.eyesapart.com/2006/11/11/coats-disease/#comment-15049 Sarah Sun, 04 May 2008 23:20:58 +0000 http://www.eyesapart.com/2006/11/11/coats-disease/#comment-15049 Hi, my name is Sarah and I have strabismus, dipolopia and sixth nerve palsy. After seeing my uncle who is an eye surgeon and who examined me briefly (without dialiting the eyes) suggested that I not get the surgery because my case was too complicated and that I should just live with it. I then went to see an eye surgeon I was referred to by my ophtalmologist and who is practicing at the biggest hospital. She examined me and dialated my eyes and then had another doctor come and examine me as well. After much notes, she suggested surgery but said it would only correct the palsy a bit. Should I go through with the surgery? I also have a droopy eyelid on one eye side and it bothers me. The double vision is annoying and people judge me because my eyes look crossed at times. Should I proceed with getting the surgery?? Hi, my name is Sarah and I have strabismus, dipolopia and sixth nerve palsy. After seeing my uncle who is an eye surgeon and who examined me briefly (without dialiting the eyes) suggested that I not get the surgery because my case was too complicated and that I should just live with it. I then went to see an eye surgeon I was referred to by my ophtalmologist and who is practicing at the biggest hospital. She examined me and dialated my eyes and then had another doctor come and examine me as well. After much notes, she suggested surgery but said it would only correct the palsy a bit. Should I go through with the surgery? I also have a droopy eyelid on one eye side and it bothers me. The double vision is annoying and people judge me because my eyes look crossed at times. Should I proceed with getting the surgery??

]]> Comment on New treatment for adults with amblyopia by Dev http://www.eyesapart.com/2006/01/05/adult-amblyopia-treatment/#comment-15030 Dev Sun, 04 May 2008 05:09:32 +0000 http://www.eyesapart.com/2006/01/05/adult-amblyopia-treatment/#comment-15030 Hi, This is a reply to Stacy and Lynn, and anyone else who is wondering about vision therapy. I have not yet started therapy, but I have been doing a lot of online reasearch and visited one Vision Therapist, and plan on going to one or more before deciding what to do. I also have the "blackout" area in my lazy right eye, and have rather severe amblyopia in that eye (20/400 no glasses, 20/200 with glasses). My eye crosses slightly, though not bad unless I have strained all day at the computer or watched a lot of TV. The therapist said my eye tracking was very good considering how bad my lazy eye was. Now for some good news. This therapist treated a 52 year old woman with amblyopia, though not as bad as mine, and after a year of therapy she has complete stereo vision and is 20/20 in the the old lazy eye! Therapy consists of 1 hour office visits every week with home therapy via computer software. Through some research I discovered that she is authorized to use a home based software therapy (under doctor's direction) called HTS - here is a link to doctors using this software: http://www.homevisiontherapy.com/doctors_disclaimer_pg1.htm Go back to their home page for more info on the program. The other therapists I plan on visiting also use this software (or at least are listed at the above site as having used it). So there is hope, though this treatment can be rather expensive since you are visiting the therapist once a week. I am checking to see if my work insurance will cover it, though I think the chances are small. Basically, it will cost me around $500 per month plus the cost of the software. I also noticed the comments from people who tried the Neurovision therapy, and that some experienced severe double vision as the lazy eye improved. The therapist I talked to said that "convergence" or tracking of the eyes was part of the overall therapy, so it sounds like Neurovision only concentrated on activating the lazy eye - not a very complete therapy program. I am hopeful that I can start therapy in a month or two, provided I can afford it. I'll post again with results if I go. Oh, and I am 57 years old, so if it works for me it will probabaly work on most people. Good luck to all of us, Dev Hi,

This is a reply to Stacy and Lynn, and anyone else who is wondering about vision therapy.

I have not yet started therapy, but I have been doing a lot of online reasearch and visited one Vision Therapist, and plan on going to one or more before deciding what to do.

I also have the “blackout” area in my lazy right eye, and have rather severe amblyopia in that eye (20/400 no glasses, 20/200 with glasses). My eye crosses slightly, though not bad unless I have strained all day at the computer or watched a lot of TV. The therapist said my eye tracking was very good considering how bad my lazy eye was.

Now for some good news. This therapist treated a 52 year old woman with amblyopia, though not as bad as mine, and after a year of therapy she has complete stereo vision and is 20/20 in the the old lazy eye! Therapy consists of 1 hour office visits every week with home therapy via computer software. Through some research I discovered that she is authorized to use a home based software therapy (under doctor’s direction) called HTS - here is a link to doctors using this software:

http://www.homevisiontherapy.com/doctors_disclaimer_pg1.htm

Go back to their home page for more info on the program.

The other therapists I plan on visiting also use this software (or at least are listed at the above site as having used it). So there is hope, though this treatment can be rather expensive since you are visiting the therapist once a week. I am checking to see if my work insurance will cover it, though I think the chances are small. Basically, it will cost me around $500 per month plus the cost of the software.

I also noticed the comments from people who tried the Neurovision therapy, and that some experienced severe double vision as the lazy eye improved. The therapist I talked to said that “convergence” or tracking of the eyes was part of the overall therapy, so it sounds like Neurovision only concentrated on activating the lazy eye - not a very complete therapy program.

I am hopeful that I can start therapy in a month or two, provided I can afford it. I’ll post again with results if I go. Oh, and I am 57 years old, so if it works for me it will probabaly work on most people.

Good luck to all of us,
Dev

]]> Comment on New treatment for adults with amblyopia by Javier Terrazas http://www.eyesapart.com/2006/01/05/adult-amblyopia-treatment/#comment-14754 Javier Terrazas Sat, 26 Apr 2008 18:37:11 +0000 http://www.eyesapart.com/2006/01/05/adult-amblyopia-treatment/#comment-14754 i have a lazy right eye, and I wear glasses .. I am now 23years old , from Mexico, right now i live in vancouver canada.. Is any one knows about the treatment or surgety.. for this please reply to my mail jano_tb@.... my right eye only moved when im sad, drunk, estress,tired, only. . my questions is.. can i take i surgery or only treatment. and what is the tratment? is good patching if i have 23 years old? javier i have a lazy right eye, and I wear glasses .. I am now 23years old , from
Mexico, right now i live in vancouver canada..
Is any one knows about the treatment or surgety.. for this please reply to my
mail
jano_tb@….
my right eye only moved when im sad, drunk, estress,tired, only. .
my questions is.. can i take i surgery or only treatment. and what is the
tratment?
is good patching if i have 23 years old?

javier

]]> Comment on Strabismus got you down? This will lift you up! by Johnny Vargas http://www.eyesapart.com/2007/12/01/hand-in-hand/#comment-14727 Johnny Vargas Sat, 26 Apr 2008 05:29:29 +0000 http://www.eyesapart.com/2007/12/01/hand-in-hand/#comment-14727 Very inspiring to watch that video. Makes strabismus seem like an elbow scratch. My son has strabismus and after 4 surgeries his alignment is within a range that is not noticeable to an untrained eye. He is a strong and confident child and loves attention. Treated for his condition as a young child, when people stared at him he smiled nice and wide with his beautiful crossed-eyes. As the saying goes.... "it was harder on us that it was on him." - Johnny Vargas (author of "Our Journey with Strabismus" a resource for parents of children with strabismus) Very inspiring to watch that video.
Makes strabismus seem like an elbow scratch.

My son has strabismus and after 4 surgeries his alignment is within a range that is not noticeable to an untrained eye.

He is a strong and confident child and loves attention. Treated for his condition as a young child, when people stared at him he smiled nice and wide with his beautiful crossed-eyes. As the saying goes…. “it was harder on us that it was on him.”

- Johnny Vargas
(author of “Our Journey with Strabismus” a resource for parents of children with strabismus)

]]> Comment on Social confidence with lazy eyes by Heather http://www.eyesapart.com/2007/10/20/social-confidence/#comment-14722 Heather Sat, 26 Apr 2008 02:02:10 +0000 http://www.eyesapart.com/2007/10/20/social-confidence/#comment-14722 I've had strabismus my whole life and have had three eye surgeries at age 1,16,& 26. My eyes basically look normal until I read alot or look at a computer screen, then my right eye goes in, and my double vision gets worse. That's when I wear my prisms. I feel like a prisoner to my eyes; like they control everything I do. It would be so great to freely see with no effort at all, but this is the way God made me ,so I guess I have to accept it. I'm 32, and happily married with two kids. I thank God they don't have strabismus. I’ve had strabismus my whole life and have had three eye surgeries at age 1,16,& 26. My eyes basically look normal until I read alot or look at a computer screen, then my right eye goes in, and my double vision gets worse. That’s when I wear my prisms. I feel like a prisoner to my eyes; like they control everything I do. It would be so great to freely see with no effort at all, but this is the way God made me ,so I guess I have to accept it. I’m 32, and happily married with two kids. I thank God they don’t have strabismus.

]]> Comment on My strabismus surgery by Terry http://www.eyesapart.com/2005/11/02/my-strabismus-surgery/#comment-14678 Terry Thu, 24 Apr 2008 23:36:54 +0000 http://www.eyesapart.com/2005/11/02/my-strabismus-surgery/#comment-14678 I would love it if someone could tell me of a qualified othamological surgeon in the Chicago area or how to go about finding one that I can trust. I am 53 years old and have been told for years that nothing could be done for me. My brother, my sister and I have all been afflicted by stabismus since we were toddlers. My brother's eyes were successfully corrected with surgery, medication and patching. Unfortunately, the doctors told my parents that my and my sister's eyes were alright when they weren't. I desperately want to have something done. My vision is fine but the outward turn in my right eye is extremely embarrassing It seems to be getting worse with age. I have been an elementary school teacher for 19 years and have suffered the taunting and teasing of my students AND their parents. I. too am an minister and an evangelist. Once I was even teased in the church! But for this problem, I am very, very happy and joyful person with many dear friends. Those people who know me love me. I don't take a lot of pictures though and run and hide when there is a camera in the room. I have gotten away with not taking school picture for about 5 years now, but this year I was forced to take one. I always tell the photographer about my eyes and we muddle through. I am afraid that I won't get married. I don't want to embarrass my husband and have people talk about him..I dream of a wedding but wonder if I get married and have a wedding if I will have a beautiful album of photos like other brides. I am looking desperately for a good surgeon. Somebody please help! I would love it if someone could tell me of a qualified othamological surgeon in the Chicago area or how to go about finding one that I can trust. I am 53 years old and have been told for years that nothing could be done for me. My brother, my sister and I have all been afflicted by stabismus since we were toddlers. My brother’s eyes were successfully corrected with surgery, medication and patching. Unfortunately, the doctors told my parents that my and my sister’s eyes were alright when they weren’t.

I desperately want to have something done. My vision is fine but the outward turn in my right eye is extremely embarrassing It seems to be getting worse with age. I have been an elementary school teacher for 19 years and have suffered the taunting and teasing of my students AND their parents. I. too am an minister and an evangelist. Once I was even teased in the church!

But for this problem, I am very, very happy and joyful person with many dear friends. Those people who know me love me.

I don’t take a lot of pictures though and run and hide when there is a camera in the room. I have gotten away with not taking school picture for about 5 years now, but this year I was forced to take one. I always tell the photographer about my eyes and we muddle through.

I am afraid that I won’t get married. I don’t want to embarrass my husband and have people talk about him..I dream of a wedding but wonder if I get married and have a wedding if I will have a beautiful album of photos like other brides.

I am looking desperately for a good surgeon.
Somebody please help!

]]> Comment on Strabismus and headaches by Michael Conroy http://www.eyesapart.com/2006/07/13/headaches/#comment-14566 Michael Conroy Fri, 18 Apr 2008 02:51:11 +0000 http://www.eyesapart.com/2006/07/13/headaches/#comment-14566 I have had strabismus since birth also when I was a kid I never got headaches but as I have got older I have had more and more real bad headaches got to the point I can get them daily some weeks something I have noted at times is a blurred spot in my bad eye that seems to float around my eye then I get a massive migraine my optician said it was stress but I don't believe that also has anyone else this condition I have long sightedness also but have been told that my vision will be gone without glasses when I am older I am seeing signs of this already with my vision without glass getting worse as the years go on I have had strabismus since birth also when I was a kid I never got headaches but as I have got older I have had more and more real bad headaches got to the point I can get them daily some weeks

something I have noted at times is a blurred spot in my bad eye that seems to float around my eye then I get a massive migraine

my optician said it was stress but I don’t believe that

also has anyone else this condition I have long sightedness also but have been told that my vision will be gone without glasses when I am older I am seeing signs of this already with my vision without glass getting worse as the years go on

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